The number of people being diagnosed with multiple sclerosis in the UK is falling but the population of those living with the disease is growing as patients are living longer, a new study at the University of Dundee has found.
Researchers say the findings have significant implications for resource allocation for MS in the UK.
Over two decades between 1990 and 2010 the number of people living with MS increased by about 2.4% a year, despite a fall in the number of people being newly diagnosed with MS over this period.
This was because people with MS are living longer – mortality rates fell by about 3% per year over the same twenty year study period.
Dr Isla Mackenzie, Clinical Senior Lecturer at the Medicines Monitoring Unit (MEMO) at the University of Dundee, led the study. She said, “Our research covers four million patients from a representative sample of GP practices spread throughout the UK. This study provides an up to date national picture of theepidemiology of MS in the UK.
“It is important to have this information on the prevalence of MS in order to understand the impact of this disease and to ensure that adequate resources are provided both nationally and regionally for people affected by MS.”
The researchers estimate that, in the UK, just over 6,000 people were diagnosed with multiple sclerosis (MS) during 2010 and there were nearly 127,000 people living with the condition.
The peak age at which MS was diagnosed was between 40 and 50 years. MS is much more common in women than in men – 72% of people living with MS in 2010 were women. MS is also more common in Scotland than in other regions of the UK.
Dr Jonathan O’Riordan, Consultant Neurologist at Ninewells Hospital, Dundee, said, “There are probably genetic and environmental factors at play to explain why it is more common in Scotland.
“The vast majority of newly diagnosed patients will have the relapsing remitting form of the disease and will be eligible for consideration of disease modifying therapies. These can cost anywhere from £5,500 to nearly £20,000 per year. This has ongoing cost implications for health care providers.”
The study was funded by the Multiple Sclerosis National Therapy Centres (MSNTC), a registered charity. Neil Kemsley, Chairman of MSNTC, said, “As more people in the UK are living longer with MS, the help and support provided by the network of Therapy Centres throughout the country will become even more valuable and important in helping them to achieve the best possible quality of life.”
Mr David Pullar, who was diagnosed with MS when he was 20 years old, is a member of the MS Therapy Centre Tayside in Dundee. His diagnosis coincided with the opening of the Tayside Centre and in fact Mr Pullar was the first person to use the Centre in 1982. He has been attending there at least once a week ever since.
“I would be lost without the Centre,” said Mr Pullar. “I use oxygen treatment and physiotherapy and feel that both benefit me enormously. I find that if I go away on holiday and don’t go to the Centre for a week or more I begin to feel lethargic, but once I have oxygen treatment I pick up. I also can’t speak too highly of the benefits of physiotherapy. Not only does it help me physically but it also has mood enhancing effects.”
Mr Pullar also emphasised the importance of the social side of the Centre and being able to meet other people living with MS. “I used to visit the Centre twice a week but for the last six months I have only been able to go once a week because of the costs of transport. I would love to be able to go twice a week if I could,” he added.